'Everything is fine, I am not dying': how to live without hair and inspire others
'04.08.2019'
Source: Air force
More than 140 million people in the world suffer from alopecia. This is a disease in which other healthy people lose their hair.
Lilia Kukushkina (Nugmanova) was hounded in college because of her appearance, she tells in an exclusive interview for Air force. Lily went through a difficult path to accepting herself, and now she is helping teenagers and their parents adapt to life with alopecia.
About the disease
Oncology or lichen - such a thought arises the first time you meet me. But this is only a disease - alopecia, not terrible and not contagious. I'm fine and I'm not going to die.
The only minus of my condition is constantly cold, and also because there are no eyelashes, something constantly hits my eyes.
As far as I remember, until 12 years of problems concerning the exterior - was not. The most difficult period came in 17, when I was in college. There was a group of guys who were college leaders. Once we had a struggle for power, and they, to offend me, created the Vkontakte group: “Nugmanova is bald with * ka”. Honestly, it was a little disappointing, but this group did not characterize me as a bad person or an unworthy person.
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Difficulty making
It was hard for me to accept that I was bald. Thank God, now everything is fine, I feel full and happy.
If I could give myself advice in my youth, I would say: "Stop limiting yourself to pleasures, worrying about the fact that the hair can fly off." I remember how I was afraid to swim and jump into the water. Even sex became a problem, if a person did not know that I was bald, and during sex the wig flew off, then it was a shock.
For a long time the wig was my protection, now it is like a toy from childhood. You can be with her, and you can be without her. What is the name of my disease, I learned only five years ago. Up to this point, I thought that this one. Those who do not know that there is such a disease - alopecia, may somehow look incorrect or ask something.
People do not know how to make compliments. Sometimes they say, “you are not very hairy, but without charismatic hair”. Well, this can also be considered a compliment.
Council to parents
Parents of children who are also confronted with this disease are afraid of the same thing. That girls will not be able to get married or get a good job. And boys will be teased or will not see him as a leader. ”
In an attempt to return the hair, my parents resort to such methods of treatment that make me shiver. Even my parents went through it. I did lasers and peels that burn the scalp. Inject hormones that may affect health.
Now parents of children with alopecia, calm down at the sight of me - a successful woman, with family and career.
When you are alone, then you have only one way that parents suggest. And when you meet others with the same problem, you see that they walk as they feel comfortable. Someone is wearing a wig, someone is wearing a headscarf, someone is just bald, someone is wearing makeup, and someone is not.
The most important thing is not to experience it all in the family, but to go to specialists and doctors. To a group of people who have already gone through this and can give real advice.
Air Force film about Lilia can be viewed here.
