Before her death, Julia Nachalova raised almost $ 1 million to save a sick child
'10.01.2020'
Source: Delphi
Not everyone knows that Julia Nachalova was engaged in charity work, but she never advertised it, writes Delphi with reference to “KP”.
“In January 2019, Julia was the first to respond to the call to raise money for the treatment of one-year-old Artem Pronin from Podolsk,” said her friend Olesya Sazykina. - Julia gave a large sum of her savings, although she already earned a little - they were invited infrequently. This collection has become unprecedented for such a small child - 900 thousand dollars! The money is transferred to an American clinic for surgery in America. ”
A rare disease was discovered in the boy - Konovan's disease.
Alla Pronin’s mother describes his essence as follows: “It turns out that the human brain is such a“ chemical plant ”that produces so many different substances that transform into one another. And without this transformation certain substances cannot form. When this chain breaks, the acid H-acetyl aspartate accumulates, which is very toxic, it prevents the formation of a layer in the brain called myelin. Mielin is like a braid for a wire (for current to flow through the wire, it needs to be bare and be isolated). And this “braid” is missing from Theme. "He cannot sit, hold his head, speak, that is, develop motorly, because there is no conduction through the nervous system from the brain to all nerve endings - he does not have the process of myelination."
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The only way to save the boy is to transplant genetic material into the brain. But in Russia they refused such treatment and put an end to the child. The American doctor was encouraging: there were two cases when children with this disease were operated on - and successfully. However, since the disease is rare, treatment is expensive.
“For a year we raised money. I wrote everywhere and everywhere, sent out posts with a prayer for help on the Internet. All charitable foundations, including Rusfond, were refused us in Russia. Where we just didn’t fight - the organizations looked at the diagnosis, the opinions of Russian doctors and gave us a refusal.
Olesya Sazykina, a friend of Julia Nachalova, responded to my letters. And Julia immediately replied that she would help. Julia Nachalova was the first to give her personal money. She then led a program with Baskov, and told him about us. And Nikolai helped with the money. Then Dima Bilan, Galkin and others. Julia Nachalova believed, actively campaigning to help us. And now, when I hear the songs of Nachalova, I think - thank you, Yulechka! So we collected the right amount, ”says Alla Pronina.
