The article has been automatically translated into English by Google Translate from Russian and has not been edited.

Every day she finds out again that her husband left her: how does a Russian woman live with a terrible diagnosis

'24.03.2018'

Source: Kazanfirst

For two and a half years, a young girl who turned to doctors for help with abdominal pain has not left the hospital room.

Фото: Depositphotos

The fatal accident or negligence of people in white coats cost her a full life, depriving her dreams, family life and prospects for the near future, tells Kazanfirst.

Clever, beautiful with dreams of a happy life

When Veronika Meshcheryakova went to the hospital, she was 27 years old. Nearby was her beloved husband, behind him was a pedagogical university and work in a bank. Before getting to the hospital, the girl studied at the KIU them. Timiryasova and was preparing to defend a diploma of a second higher education, this time in economics. According to the first, she is a teacher of English and biology. Veronica was a very active person. She herself learned to drive and was well versed in fashion, stylishly dressing her mother and husband.

According to Svetlana Meshcheryakova, the girl's mother, she met her future husband Maxim in 2007, they began to live together with 2011, and finally got married to 2014. Thanks to her daughter, he went to study and got great career prospects. Two young people consciously made their choice, it seemed that nothing could destroy their happy life. However, when trouble struck the family, Svetlana and Veronika were left alone with her.

“A man cannot say a word, but they start cutting it”

Veronica went to the hospital in December 2015 complaining of abdominal pain. She underwent surgery and was diagnosed with Guillain-Barré syndrome (a neuropathic disease that manifests itself in the form of flaccid cuts, autonomic disorder and sensory impairment. tissues and their increased excretion with urine and feces. - Ed.), in which it is strictly forbidden to operate.

- Then her pain did not stop. Four days later, she underwent another operation, then another week later. She began to weaken, eat poorly, could not move, and then almost stopped breathing on her own. She was transferred to the RCH for artificial lung ventilation and underwent another operation, - Svetlana Meshcheryakova recalls.

It is very strange that the doctors did not make the diagnosis correctly, since porphyria is detected by urine color, the analysis of which is given during hospitalization, and it is rather difficult not to notice that she suddenly became brown.

- I call it fascism. Why? A person is immobilized - he cannot even raise his hand, a person cannot say a word, and they begin to cut it, - the mother is indignant. - Moreover, the disease is determined elementary. It started on December 6, 2015, and on the 19th she still had brown urine. I believe she only survived because she is strong. Perhaps the first operation was needed - we brought out this mutational gene. But why were there two more to do?

The strange behavior of her husband, and doctors who are not gods

When the girl went to the hospital, her husband was still with her. Until April 2016, he periodically visited her and hoped that his spouse would recover. But, choosing between caring for a sick wife and personal interests, he stopped at the second. Now he works in an oil company in Nizhnevartovsk and is not interested in Veronika, stating to his mother-in-law that these are not his problems.

- When the porphyria was determined, I paid him a trip to Moscow. He met with a senior researcher at the Hematological Research Center Yaroslav Pustovoit, who told him that such people are fully restored and even have children. He came and told me that everything would be fine, in a year or two she would recover. And then he stopped coming, - says Svetlana.

Relationship with her husband ended in filing for him to court demanding alimony to help Veronica. Women in this process won. True, they will receive them only a month, then there will be an examination for disability. Now the girl has the first group. Mother hopes that while this category will not be lowered.

Now the girl after experiencing problems with short-term memory. Every day she asks about where her husband is, and when her mother is forced to tell that they are divorced, then Veronica again experiences terrible emotions from the break.

Perhaps this could have been avoided, but she just hadn’t done an MRI. The procedure, which is very important for rehabilitation, Veronica went through only almost a year after clinical death. And that is because the mother managed to persuade the doctors, reaching the Minister of Health of Tatarstan, Adel Vafin. She met with the minister often and thanks him for the fact that he did render at least some assistance. These measures were not enough, but my mother at least was able to stay with her daughter in intensive care all the time, not 15 minutes a day. And her efforts managed to bring the girl to consciousness.

Considered and the issue of treatment abroad. But neither the state nor Svetlana had any money for this. According to mom, Veronika will definitely not be worse. Now it’s just necessary to remove ossification in the hip part of the girl and start aggressive rehabilitation as soon as possible, again integrating the girl into the society. She cannot speak articulately yet, but, nevertheless, there is progress. Some moments the girl remembers and even philosophizes.

- When she was asked "what hurts?" She answered "my soul hurts."

We were invited to the program “Let them talk”, and she wants to go there. True, she said that when she met her husband, she would first cry, and then spit in his face. Even the doctors wanted to call him. Because on emotions she would recover faster, - says Veronica's mother. The fact that the dynamics is positive was also recognized by the chief researcher of the Center for Neurosurgery. Burdenko, Doctor of Medicine Oleg Zaitsev.

- He considers it adequate. According to him, the prognosis is favorable, only rehabilitation measures are needed. And even now, if an operation is performed, and it must be done, it will only be done under local anesthesia. The hole in the throat must be sewn up - also under the local one. It won't be worse, - Svetlana Meshcheryakova shares the opinion of Oleg Zaitsev.

Mom believes that her daughter will definitely stand on her feet, marry again and give birth to children. A woman intends to fight for the future of her child to the end.

- I scold doctors all the time. They say, "We are not gods." Okay, but who allowed you to be barbarians? - Mom asks a rhetorical question at the end of our meeting.

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